How to Prepare for Cold and Flu Season with a Medically Fragile Child
For medically fragile children, cold and flu season can pose serious health risks. Children with weakened immune systems, respiratory conditions,…
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Understanding Medicaid Waivers and Financial Assistance for Medically Fragile Children
The financial burden of caring for a medically fragile child can be overwhelming. Many families struggle with medical bills, home…
Preventing Caregiver Burnout – The Importance of Self-Care for Parents
Caring for a medically fragile child is a demanding role, and many parents put their own needs on the back…
How to Build a Medical Care Team That Works for Your Family
Caring for a medically fragile child requires a strong and coordinated medical care team to ensure their health and well-being.…
Creating a Safe and Accessible Home for Your Medically Fragile Child
Your home should be a place of safety and comfort for your medically fragile child. Unlike other children, they may…
Navigating Life with a Medically Fragile Child – Finding Strength in the Journey
Parenting a medically fragile child is a journey filled with love, resilience, and unique challenges. From managing complex medical needs…
Resources You Can Trust
Resources for Families
Welcome to our Resource Page, designed to offer valuable support and guidance to families caring for medically fragile children. At Providence of Healthcare of Georgia (PHG), we stand by our guiding principle, “Care When and Where It’s Needed Most.” We understand your unique challenges and are committed to providing the resources you need to support your child’s health and well-being
Georgia Pediatric Program (GAPP): Learn more about the GAPP program, a Medicaid initiative providing services to medically fragile children under 21 in need of skilled nursing care and personal care support at home and in the community.
Support Organizations:
- Family Voices: A national organization offering support and resources for families of children with special health needs. Website: www.familyvoices.org
- Parent to Parent USA: Connects parents and caregivers of children with special needs for mutual support and sharing of resources. Website: www.parenttoparent.org
Financial Assistance:
- Supplemental Security Income (SSI): Information about the SSI program that provides financial assistance to children with disabilities. Website: www.ssa.gov/ssi
- Medicaid Waivers: Explore Medicaid waivers that offer additional services and support for children with special healthcare needs. Website: www.medicaid.gov
Medical Equipment and Supplies:
- Friends of Disabled Adults and Children (FODAC): Provides medical equipment and supplies to individuals with disabilities. Website: www.fodac.org
- Reaching for the Stars: Offers assistive technology resources for children with cerebral palsy and other disabilities. Website: www.reachingforthestars.org
Educational Resources:
- Individualized Education Program (IEP) Guide: A comprehensive guide to understanding and developing IEPs for children with disabilities. Website: www.understood.org/en/school-learning/special-services/ieps/iep-101
- Georgia Department of Education: Information on special education services in Georgia. Website: www.gadoe.org/Curriculum-Instruction-and-Assessment/ Special-Education-Services
Respite Care Services:
- ARCH National Respite Network: Locate respite care services in your area to provide temporary relief for caregivers. Website: www.archrespite.org
Community Support:
- Local Support Groups: Connect with local support groups for parents of medically fragile children. Reach out to hospitals, community centers, or online platforms for information on nearby groups.
Parental Self-Care:
- National Alliance for Caregiving: Resources and support for caregiver well-being. Website: www.caregiving.org
- Mental Health America: Information on maintaining mental wellness for caregivers. Website: www.mhanational.org
Legal and Advocacy Resources:
- Disability Rights Georgia: Protection and advocacy for the rights of individuals with disabilities. Website: www.disabilityrightsga.org
- Special Needs Alliance: Locate an attorney specializing in special needs planning. Website: www.specialneedsalliance.org
At PHG, we are dedicated to providing exceptional healthcare and valuable resources to empower families with medically fragile children. We believe that by coming together and offering “Care When and Where It’s Needed Most,” we can create a community of support and strength for every child and family we serve.